Title

FACTORS ASSOCIATED WITH THE SUCCESSFUL VOCATIONAL REHABILITATION OF INDIVIDUALS WITH USHER SYNDROME: A Qualitative Study

Document Type

Dissertation

Publication Date

2014

Abstract

This dissertation investigates the remembered lived experiences of six individuals who were diagnosed with Usher syndrome, the effect that the progressive condition had upon their lives, and their experiences with vocational rehabilitation. The participants recalled details of their own reaction to the diagnoses as well as the reactions of their parents. Themes were identified in their responses that included independent dependence, Usher support, parental reaction, lowered expectations, hope, and ongoing change. The participants, three men and three women, reported periods of adjustment and sadness as well as hopes for their future, career accomplishments, and social interactions.