Title

PHYSICAL AND PSYCHOLOGICAL HEALTH, SOCIAL TRUST, AND FINANCIAL SITUATION FOR PERSONS WITH USHER SYNDROME TYPE 1

Document Type

Document

Publication Date

2016

Abstract

Through a questionnaire, this study compared 60 persons with deaf-blindness due to Usher syndrome type 1 with a cross-section of the Swedish population. The psychological health, social trust, and financial situation of persons with USH1 were found to be significantly poorer than those of the reference group, although this was not the case for physical health (persons with USH1 only expressed significantly more problems with headache). The USH1 group reported fatigue, loss of confidence, suicide thoughts and attempts, not wanting to go out alone, not receiving help, and having no one to confide in. BRITISH JOURNAL OF VISUAL IMPAIRMENT, Vol. 34, No.1, pp. 15-25.

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